I never look forward to ME Awareness Month with a sense of anticipation, more of existential dread. But I realise it is important for the many suffering with this much maligned condition, that the community continue to raise awareness. For the many suffering, those yet to be diagnosed, the many minus any guidance, help or support. … Continue reading May – ME Awareness Month
Hello again from here. It is lovely to be writing a little again. Today the letter of 'MEcfs Street is ~ Aaaaaaggh'!! Seriously though, thank you Sesame Street for the many cheery episodes in my children's youth. Is that a tautology? Injections at Home As usual, I digress. Back to the topic in question. As … Continue reading Comparison – the Thief of Joy
Following on from my previous post about PIP. I tried to listen to the Chancellor's Spring Statement yesterday, but only managed about 10 minutes. Partly because it felt pretty excruciating, partly because I struggle to listen, watch and absorb detail, partly because I couldn't bear the MP's nodding and knowing smiles, and partly because I … Continue reading The Chancellor’s Spring Statement – Shockwaves!
It is proving an ever more challenging time just coping with awareness of everyday headlines. With growing feelings of unease that perhaps our government is increasing its acts of austerity to gain favour with another on a distant shore. Or to be seen to be aligned. I hope I am wrong. If you are a … Continue reading Proposed Changes to PIP – Thoughts
Hi dear readers from a room upstairs. I'm still here! Settling down following our home move earlier this year. It is taking a while. More about that in upcoming posts, but suffice to say from a search radius of seven miles (that's MEcfs for you) we ended up moving less than one. As someone observed … Continue reading The Room Upstairs at Edinburgh Fringe 2024
The Room Upstairs - Livestream Viewer Review I have had the pleasure of watching the Baloney Theatre Company production of The Room Upstairs via live stream this week. The play has been running at Wanstead Fringe Festival, with the closing night being tonight. And I am just blown away. A play written by my daughter, … Continue reading The Room Upstairs – Livestream Viewer Review
Disclaimer: This blog post is about my own strategies. They are not posted to and do not constitute any form of medical advice. What Is An MEcfs Crash? MEcfs 'crashes' are horrible. Basically, your body loses all strength very quickly (what one had of it in the first place). And if you don't lie down … Continue reading An MEcfs Crash – What Is It? And How To Deal With It
Hello readers! While I plod through yet another MEcfs setback, groan, I have exciting news. One of my fabulous children, who is an actor/writer/musical theatre peep and all round creative, has written a one man show about the experience of their parent, ie myself, having MEcfs. The show is entitled: Image Credit: Baloney Theatre Company … Continue reading The Room Upstairs at Wanstead Fringe 2023
Hope found in M.E. 