Accessibility – Why More Is Needed

A thought for Wednesday. Accessibility Definition: "...able to be reached,... or used by people who have a disability. Features such as non-slip floors and accessible entrances" I was going to post this on facebook, following a visit to the optician which was long and tiring, preceded by a week plus on bedrest which was equally … Continue reading Accessibility – Why More Is Needed

An Easy Breakfast

An Easy Breakfast As a pwME (*Person With ME) I'm always looking for ways to claw back some energy from anywhere. And a recent breakfast foray was no different. To set the scene. I already have a Breakfast station *pictured in our bedroom. Often accepting I need a mini-fridge up here too, but I am … Continue reading An Easy Breakfast

Hoorah for the Humble Tray

Cup of tea and a yoghurt

Following a pretty heavy week on social media and whilst also being conked out in bed. As a much needed diversion, I decided to post a lighthearted image on twitter as part of the very cheery #MyDailyThankYou from Emma of Not Just Tired. https://twitter.com/hopefoundinme/status/1451312801000083458?s=19 A response from lovely Caz of Invisibly Me got me thinking … Continue reading Hoorah for the Humble Tray

GET and CBT – My Awful Experience as an ME Sufferer

I have thought, with great hesitation and a lot of emotion, if it was time to give a little insight into my experience with a thing called GET - Graded Exercise Therapy and CBT - Cognitive Behavourial Therapy. It's hard to revisit. But with the advent of Long Covid and some recent debacle about a … Continue reading GET and CBT – My Awful Experience as an ME Sufferer

Exploring Screen Reader Apps

You may have read my previous post Ode to a Field, about locally endangered Skylarks. Once I had started to settle down emotionally I was able to look at the ongoing situation here in a more proactive way. But it hasn't been and isn't easy. To the point of my local Council asking me to … Continue reading Exploring Screen Reader Apps

Covid19 Vaccination – My Experience

I am very fortunate to have received my first dose of the Covid (Oxford/Astrazenica) vaccine this week. Wahoo! There is a lot of concern here in the UK for groups who are slipping through the net of the Covid19 Greenbook, which includes Vaccination Priority Categories. That being a guide document for GPs, as I understand … Continue reading Covid19 Vaccination – My Experience

GET lost – Farewell to Graded Exercise Therapy for UK ME Sufferers – Hopefully

A Paper copy of The Times UK Newspaper

What an absolutey landmark day occurred this week. I'm still pinching myself. GET - aka Graded Exercise Therapy is to be scrapped as a so called ‘treatment’ for MEcfs sufferers in the UK. The implications of this long awaited decision are immeasurable. Not only for current and future sufferers of MEcfs, but also for LongCovid … Continue reading GET lost – Farewell to Graded Exercise Therapy for UK ME Sufferers – Hopefully

Chronic Illness Shower Hacks

Cat in a pink shower hat

Hi to all my readers. I hope you’re doing well despite all that life currently launches at us. Yes, sorry to mention we’re still in year 2020! Although I have included some details about and images of products, this is not a sponsored post. This post is brought to you via the WP Block Editor! … Continue reading Chronic Illness Shower Hacks